Hi, my name is Drinda I am 54 and have dementia, could you please help me with information to read to help me deal with the changes that are happening to me, i am scared. and just need some help. I was diagnosed 7 years ago, and have been getting electrical convulsion therapy to control shaking and crying. I have chosen to stop because it is not helping me anymore. I have doctors and just could use more information that you

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Hi Drinda, I’m sorry this is happening to you. I will tell you that ECT often causes significant memory loss…were you doing ECT for depression before or after your dementia diagnosis? ECT is probably making your memory loss way worse. 54 is very young. Do you have an official “early onset” diagnosis? http://www.alz.org/i-have-alz/if-you-have-younger-onset-alzheimers.asp may help

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Rachael Wonderlin is an internationally-recognized dementia care expert and consultant. She has a Master’s in Gerontology and is the author of two published books with Johns Hopkins University Press. Rachael owns Dementia By Day, a dementia care consulting and education company.

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